Rare Disease

Member Stories

David’s Story: Living with Marfan Syndrome

October 4, 2021
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My story begins with a diagnosis of Marfan syndrome – a rare genetic disorder that causes the connective tissue to weaken. Because this complex condition requires a specialized and experienced approach to care, I make sure to always wear my MedicAlert ID for Marfan’s and keep my membership up to date in case of emergency.

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