Rare Disease

My story begins with a diagnosis of Marfan syndrome – a rare genetic disorder that causes the connective tissue to weaken. Because this complex condition requires a specialized and experienced approach to care, I make sure to always wear my MedicAlert ID for Marfan’s and keep my membership up to date in case of emergency.

Sarah, a MedicAlert member since 1984, didn’t have time for a cold, much less a rare, life-threatening disease. She was too busy raising two kids and working as an executive at an advertising and marketing firm to face a diagnosis of primary amyloidosis. “I was in complete denial,” Sarah says. She contacted another