Like other boys his age, I’mere loves going to the park, eating spaghetti and fruit, and visiting Disneyland. Nothing stops I’mere from playing an energetic game of hide and seek or enjoying his Sonic toys, not even the seizures he withstands or the bleeding disorder Hemoglobinemia E (HbE). Hemoglobinemia E is an inherited
Sarah, a MedicAlert member since 1984, didn’t have time for a cold, much less a rare, life-threatening disease. She was too busy raising two kids and working as an executive at an advertising and marketing firm to face a diagnosis of primary amyloidosis. “I was in complete denial,” Sarah says. She contacted another
People with rare disorders can be vulnerable in an emergency If you’re living with a rare disease, it’s important to understand the possible complications that