If not for Brandon’s MedicAlert band, I don’t know what would’ve happened when he wandered off at an amusement park last year during Memorial Day weekend. We were all standing in line for the Iron Dragon for a long time. For the first time, my youngest sons met the height requirements for the rollercoaster. I was going
On a daily basis, Jessica manages multiple heart defects such as Tetralogy of Fallout (ToF), which is a cardiac anomaly that’s a combination of four related heart defects: ventricular septal defect (VSD), overriding aorta, pulmonary stenosis, and right ventricular hypertrophy. Along with ToF, Jessica also lives with
Diagnosed at the age of 10, Bruno’s been battling his condition for over 30 years. And as you can imagine, living with a chronic medical condition at such an early age, he has overcome many obstacles throughout his life. From managing epilepsy as a child, teenager and young adult, Bruno has faced adversity with strength
I have never known life without medical issues and I’ve accepted that as my norm. I was first diagnosed with anaphylactic food allergies , asthma and eczema at the age of two. My mother, doubtful that a toddler would be able to properly advocate for herself, immediately measured my teeny wrist using a dollar bill and
Nine-year old Brandon can usually be found playing in his tree house or out in the yard exploring. He has autism, and although many kids with autism wander, Brandon wasn’t typically one of them. There had only been a few instances while in the company of his mom, dad or four siblings that Brandon had wandered off.
Some people use an LVAD for the rest of their lives, but for Chrissy, it’s a “bridge to transplant” while she waits to receive a new heart. Donor hearts are already difficult to come by, and because she is 6’1”, Chrissy needs a heart from a taller person. Her health journey affects not just her life, but the lives of her
Like other boys his age, I’mere loves going to the park, eating spaghetti and fruit, and visiting Disneyland. Nothing stops I’mere from playing an energetic game of hide and seek or enjoying his Sonic toys, not even the seizures he withstands or the bleeding disorder Hemoglobinemia E (HbE). Hemoglobinemia E is an inherited
Living Well with Type 1 Diabetes: 50 Years of Resilience and Triumph Brenda’s journey with Type 1 diabetes is a lifelong one, marked by overcoming
Donovan’s story illustrates the danger of wandering for children with autism.
